My Disease is Not For Profit

Life is not worth getting worked up over the little things. And living with a highly stigmatized disease is not easy. Insensitivity is around ever corner, and it comes most often from family and friends, people who should know better.  I try and get past the comments, but sometimes it just doesn’t work. And today, I cannot let the insensitivity go.

I am angry.

It happened like this:

I was talking to someone about how Johnson & Johnson is leaving the insulin pump business. Their insulin pump is old and outdated. They didn’t seem to be investing in new technology. My personal opinion, it was only a matter of time before they closed the business.

Which for me is surprising. Diabetes is one of the world’s fastest growing chronic diseases – if not THE fastest growing. Of course, this is predominately type 2 diabetes, but type 1 diabetes is showing a higher prevalence as well.

Anyway, J&J is leaving the insulin pump business. And this person immediately responded,

“Leah, they need more people with your disease.”


I was shocked. I still am.

This comment came from someone who should know better.

Type 1 Diabetes is an INCURABLE autoimmune disease. That means that my body, one day on it’s own, decided to attack all insulin producing cells in my body and kill them. I no longer produce any insulin. Insulin is a hormone that the body absolutely requires to sustain life. Without it, I die. One more time, I did NOTHING to cause this disease.

My life since an October day in 2006 consists of insulin subcutaneously flowing through an insulin pump, where I need to change the injection site every two to three days. Nothing is automatic. The machine doesn’t just “do the work” for me. I need to input the amount of insulin I need for EVERY meal EVERY day for the rest of my life. A drug that can kill me with even half a drop more than needed. Did I mention, I need to make life or death decisions every day?


Because people think my disease should be for profit.

A disease I did nothing to contract.

A disease that is not curable.

A disease that requires 24/7/365 attention.

I fight for my life every single day, and nobody knows.

I live with an invisible disease.


P.S. This person is fully aware that I am type 1 diabetic. It is actually the same person that inspired me to write, Diminishing Diabetes.




  1. You can tell them that we don’t need more people to get diabetes, we need easier pump approvals. Or even a pump covered entirely by every insurance once you get T1D. Like an automatic system that allows us to get the best care instead of years of struggling to finally receive a pump. Not everyone with T1D is so lucky to have a pump approved 🙂

    Liked by 1 person

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s